We are working together to help raise money to fund gene therapy clinical trials. The doctors at Nationwide Children's Hospital in Ohio are sure that they found a cure for our beautiful boys and it's called Gene therapy. It's a one-time treatment, so no more weekly pokes or infusions. The only thing that is holding us back from starting clinical trials is funding. We need $2.5 million dollars in total to bring this possible cure to clinical trial for our boys.
Project Alive is the Hunter Syndrome awareness and fundraising campaign of Saving Case & Friends, Inc. (SC&F), a nonprofit corporation organized under the laws of the State of Tennessee. Project Alive is a registered assumed name of SC&F and is qualified under section 501(c)(3) of the Internal Revenue Code with a tax ID of 46-4617970.
The mission of Saving Case & Friends is to cure Hunter Syndrome / Mucopolysaccharidosis II through research and advocacy.